Merry Christmas

The show must go on...

Or so I have told myself a bazillion times over the last few days.

Christmas is such a bittersweet time. There is all the usual joy that we get at Christmas time, the joy of being with friends and family, good food, good drinks, good presents, and just generally a really good time...

But it sucks... it sucks so very very much and it hurts in ways that I cannot even begin to explain, and the presents and the family are the worst parts!

The presents... well, like I said in my last post, there is the horror of trying to buy something that doesn't come from the baby section but is developmentally appropriate for our developmentally delayed child and knowing that you looked at all those same toys this time 12 months ago.

Beyond that, there is the family aspect... I have a nephew who is only a few months older than Nicola, and every year we buy gifts for him and every year he develops and he grows and he moves through milestones and we buy suitable gifts, smiling and trying to be happy and ignore the hurt that our child isn't doing that.

I don't begrudge my brother and sister in law their 'normal' child, not at all. I love him dearly, I love them all dearly, but sometimes it just really hurts that something that is so mundane has been snatched away from me and I just can't get it back again.

Now, add to that the additional pressure that this year had to be extra perfect because I have this nagging little voice in the depths of my mind who keeps trying to rain on my parade... and no matter how hopeful and positive I am, this little voice grounds me and tells me that this may be our last Christmas together as a family.

My daughter has cancer.

My daughter has a rare and aggressive cancer that has spread widely through her tiny body.

I look at it, and I can't see it, but I can see the affects that it is having on her, and I hate it, but it also makes me more determined to make the most of every minute.

So, naturally, seeing as how I wanted this Christmas to be the most spectacular Christmas we have ever celebrated, I ended up as sick as a dog and have spent the last week on the couch, huddled under a mass of blankets and watching kids tv because I couldn't find the energy to get up and turn it away from Dora the Explorer.

Yesterday I emerged from my hidey hole in my blankets long enough to tell my family that if they wanted anything more than what was already in my pantry or my fridge (which pretty much meant olives, gherkins, an abundant supply of chips, mixed nuts... well, you get my drift) then they were on their own.

So our Christmas was far from the splendid sumptuous feast that I had anticipated... we didn't bake in preparation, we didn't decorate every inch of the lounge, we didn't sing Christmas Carols until the old scrooge next door complained... we didn't do anything I had wanted to do...

But we had a good day.

We had the love of family and friend, we were all together, and we had a good day. Thanks to my Father in Law, the girls 'Santa Claus Wish List' was fulfilled... they spent the day eating chips, lollies, icy poles and junk that they would never normally eat, and they had a ball doing it.

Nicola spent most of the day sleeping. Things seem to be really taking it all out of her at the moment. She is having a bad reaction to some of the chemo drugs and has developed some respiratory distress. Her pain seems to be finally under control as they have increased her pain relief in a huge way, but her anxiety is escalating out of control because of the increased level of medical intervention we are dealing with. And just because today she decided she needed a bit of extra attention, she woke from her midday nap with a massive allergic reaction to something and her face was all puffy and swollen and covered in a big blotchy rash.

It wasn't the grandiose day that I had anticipated, but even with misadventures, illness and random issues, it was still a great day...

And now it is over.

All four little princesses are tucked up in their beds, snuggling into new presents, and dreaming of their joyous day...

And I resume my vigil, watching. Watching her move, watching her breathe, watching her sleep.

I hope you have all had a wonderful Christmas, hopefully a lot more straight forward than ours... I hope that Santa was kind to each and every one of you, and I hope that our Christmas' have been filled with love and laughter.

Merry Christmas to all... and to all, Goodnight!

Slashed



Dress- ASOS . Shoes- Topshop . Necklace- Topshop



Oldschool Denim

Skirt- H&M . Jacket- Topshop (old) . Jumper- ASOS . Bag- John Lewis. Belt- Vintage . Necklace- Miss Selfridge

I love this old school dark denim jacket, i dug it out of my wardrobe the other day after a good few years in storage! Its from Topshop so its even got an old 'moto' label on it, how retro!

Im off to do some last minute Christmas shopping today! Practical shoes are definitely a necessity :)

Its my mum's birthday on Christmas day so i need to get a few birthday related things too! Only four days to go now, i am SO excited. One of my sister's is back home already but the other one arrives on Friday which is also exciiiiting! I love being reunited with family over the holidays.

Nic
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Black and Black

Jeans- AllSaints . Top- Topshop . Bag- Zara . Cuffs- ASOS. Necklace- Topshop

 Nothing beats a bit of black on black! All you need to do is add a few accessories and you're good to go!

I wore this for a little escapade this morning to retrieve my car, maybe slightly over dressed for such an occasion but Oh well, im feeling festive :) You'll be happy to know the jaffa cakes went down a treat last night - and so did the beverages! OH my heaaaddd.

I am well and truley beat from the festivities of this weekend, i guess all there is to do now is enjoy the duvet day while my dad cooks us all a roast! mmmmm.

Nic

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Santa Clause Blues

Christmas is a time for loving and giving... it is a celebration of family, of friends, of love... and of togetherness...

But for me, it is also a massive slap in the face. It is a huge reminder that my child is still different... my child is not like the others.

Last year it was hurtful because I was buying my 2 year old presents that were 6+ months.

This year it is just heart wrenching because I am buying my now 3 year old presents that are targeted for ages 6+ months.

Beyond that there is the constant niggling little voice deep in the recesses of my mind that keeps whispering that I need to make this Christmas something special... because, as positive as I try to be, being realistic, I just don't know how many more of these we will have together.

With that in mind we have made the conscious choice that we want Santa photos done this year. It's not something that we have particularly put a lot of time or effort into worrying about previously because the line ups are just horrific and people are awful and Nicola just generally doesn't like the crowds and the noise and everything.

I thought I would go out on a limb and I called center management and I asked them if it would be possible to book a specific time to go in and have photos done. I explained to them that Nicola is only 3 years old and has very complex disabilities and is now battling cancer and to line up for an hour would just cause her immeasurable distress and would make the photo impossible...

Just trying to relate all the issues she has with society in general at the moment was enough to reduce me to tears and my husband had to take over the phone call because I just couldn't say any more.

Thankfully it turns out that the marketing manager has a wonderfully kind heart and they have organised for us to meet them at center management and they will take us straight to the front of the line so that we can get her Santa photo.

So far I have spent three days looking in the shops trying to find something suitable to give to Nicola for a Christmas present. I needed to get three of them. One from Santa, one from Mummy and Daddy, and one from Grandad Bob.

Everything that would have been considered 'suitable' for her level of abilities we either already have or is pretty much the same as what we already have.

Everything in the kids section is too big for her, and even the stuff in the baby section, most of it is just simply not suitable because of her disabilities.

It hurts to see everyone else running around, merrily plucking toys left, right and center from the shelves, laughing and having a jolly old time, and all I want to do is cry at the unfairness of it all... not unfairness because it's hard for me, but unfairness because it's hard for her. She is so limited in what she can do, and so limited in what she can use and what she can have.

To top it off, because of the last round of chemo, Nicola is due to be neutropenic over Christmas and New Year which means that she will be prone to all infections and bugs, her bones and marrow will be hurting and she will generally just be feeling miserable and utterly crap.

It's hard, we have to try and make the most of everything because we have other children that still deserve everything we can give them for Christmas, but with Nicola and the cancer and how miserable and cranky and pained she is all I want to do is to cancel it and tell everyone to go away...

But we can't.

Unfortunately, it seems, Christmas just must go on.

Shirt!

Gilet- h&m . Shirt- RiverIsland . Shorts- Zara . Shoes- ASOS. Bag- JohnLewis

 Hello everyone, i hope you are having a nice weekend!

Here's what i wore today! I saw this shirt online a few days ago and loved it straight away but was too impatient to order in online so went into town to investigate further. Luckily they had it in the Aberdeen store (which never happens!), so i had to get it :) i love the black button collar detail and the black ribbons which you tie in a bow or just leave them hanging like ive done.

Oh gosh, im a little bit tired/rough after our work night out last night which was so much fun. whose idea was it to do jaeger bombs and karaoke?! oh wait.. it was mine. whoops! Anyways ive got to man up and start to get ready for our girls christmas night out tonight. It started off with some civilised dinner plans which slowly turned into we're too skint lets sack the food and do cocktails and snacks at one of the flats! haha We've been instructed to take along a festive treat each, a metre long stick of jaffa cakes counts as festive treat right?! If not il take some of my festive joke skills with me. :) they are second to none!

Nic
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Dark for Winter

Jacket- Topshop Boutique . Jumper- NewLook . Leggings- H&M. Shoes- Office . Bag- John Lewis

So i've died my hair darker for the winter :) I was getting really annoyed with it looking dry all the time and always find brown makes my hair look in so much better condition! What do you guys think?!

Also! Does anyone else have black bag syndrome? For some reason I find myself only being able to buy black bags, I was soo close to buying a burgundy/red coloured one the other day but chickened out. I cant even really do grey! Its just black black... how boring of me. Anyone know of any good bags that could change my ways? I really need to break the habit! :)

It feels so strange to be free of Uni work for a couple of days.. but Ive got a fun filled weekend ahead with two xmas meals (is it sad that im looking forward to the cracker jokes the most?).  Ive spent most of the day out shopping trying to source outfits for them because my ASOS order hasnt come in time :( but at least now i have a few options! I love options.

What are you guys up to this weekend?

Nic

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Cut Outs

Dress- ASOS. Shirt- H&M . Bag- Concept . Hat- ASOS. Shoes- Topshop

You're all going to think im crazy, but i wore this dress out for a few festive drinks on Friday night, its safe to say i was freeezing!

I actually got this dress back in September but hadnt worn it until now, im not really sure why but im glad i dug out it and took it for a little outing.

I handed in some Uni work on Friday and possibly took the celebratory drinks concept a little too far which resulted in staying out until all hours both Friday and Saturday... but it was definitely worth it and all in the name of festive fun.

BUT i wore the white tuxedo jacket last night and i have something awful to report.... somebody STOOD on it, yes! stood on it... or maybe trampled on it is a more suitable phrase...? so there is a massive black footprint on it now and im not even exaggerating. I have a picture to show you as well just to emphasise the tragedy of the situation! open at your own risk...here

I dont know how im going to rectify this... any suggestions?
Nic
xxxxx

When it rains, it pours.

Today I finally figured out why I have spent this week feeling so overwhelmed with everything.

Even though we are at home, I have been at the hospital every single day this week.

Monday we had to take her in to have some bloods done to monitor her blood counts post chemo.

Tuesday we had to go back for a review because her blood counts were not what they had expected to find - her white cells were too high, her hemoglobin was too low and some of her electrolytes were off. She was sent home because they wanted to take a minimalist approach in regards to intervention, hoping she would self correct.

Wednesday - we had to do a rushed trip at 10pm for an urgent review because she developed severe respiratory distress and started to turn blue.

By the time we got to the hospital she had improved enough for them to send her home as long as we watched her very very closely because being admitted was likely to be more detrimental given that the ward is full of children with nasty bugs.

Thursday we had to go back for a review after her breathing issues. They decided that it was most likely a bit of a viral infection that was affecting her.

Today, Friday, is chemo day in Townsville. We had to go in early for an assessment by the doctors before they could do her chemo. I was late because it took me ages to find a park after some stupid ignorant moron stole the park I had been waiting for, but that is a whole other rant in itself. The doctor was also running late, which made it ok. Then we had to wait for the treatment room to be available and then we had to do bloods etc, and finally she got the chemo done.

At the same time they have diagnosed her with croup, which is what is causing the respiratory problems. Because her lungs are already compromised because of the metastasis in her lungs from the cancer, any little respiratory bug that wouldn't really bother a healthy child all that much is knocking her for six.

So, now, I have a medically fragile child with cancer, who is already respiratory compromised and has underlaying pain management issues, who now has additional pain from bone/marrow pain caused by the chemo, itching caused by the pain medications she is on, and now a red raw throat and respiratory distress caused by croup.

Poor little mite just can't seem to catch a break at the moment!

:(

Bit Windy Today



Jacket- Oasis . Jumper- NewLook . Leggings- StyleStalker . Shirt- H&M. Shoes Topshop. Bag- Vintage

 Oh my goodness, Its been so so so windy in Scotland today! Theres been severe weather warnings and a bunch of the Christmas lights fell down on the main street... apparently its called hurricane Bawbag. but that didn't stop me getting a few outfit snaps for you all :)

I love this sparkly jumper, its so festive and so warm! Going out in these leggings probably wasn't the best idea i ever had but I'm wearing a very practical jumper and hat so it balances it out...the blanket in my car definitely came in handy too!

I'm thinking i reaaally need to start my Christmas shopping soon, but ive just been SO busy with Uni work i havent had time yet... usually im way more organised. How are you guys on with it? anyone all set yet?

Also, I'm sorry if you've sent me an e-mail and i havent managed to get back to yet, like i said its been a hectic week but i prooomise i will reply this weekend. :) promises promise, comments too!

Happy Friday for tomorrow everyone, only 17 sleeps until Christmas!

Nic

xxxx

Bobble Hat

Jacket- Oasis . Jumper- American Apparel . Shorts- Zara . Shoes- Topshop . Bag- Concept . Hat- Topshop

 Hi Everyone,

So this is what i wore today! It was so frosty so this hat was a life saver. I even decided to take a blanket with me in my car this morning which was probably the best idea i ever had! I Seriously recommend it, even on the bus, why not?!

Ive been living in these simple black tailored shorts recently. You know sometimes you feel a bit self conscious wearing shorts even if your wearing like a jumper and tights with it? Well these are quite long and loose fitting so you dont have to worry about getting a disapproving look from your Granny. They're high waisted too so look good with a top tucked in or a blouse for a smarter evening look!

Nic

xxxx

Polo Neck Knit

Jumper- h&M . Skirt6- H&M . Bag- Zara . Hat- ASOS. socks-H&M . Shoes-Topshop

Hi Guys,

Thought i'd just show you this jumper i got in H&M the other day, i love it! does it surprise you that i bought it in black/blue too!? Its not too thick so perfect for layering under leather jackets but it still keeps me warm as well :)

I had to put on some tights before i left the house because its December and i didnt want to catch hypothermia! but this is what i would wear if i lived somewhere of a better climate, one can dream!

Ive been looking for a pleated skirt for aaages so had to buy this when i stumbled across it even though it was  a few sizes too big. I just took it in a few inches at the waistband and i think it looks ok!? what do you guys think?

Hope you all had a good weekend!

Nic

Lucky Fiver

Jacket- Vintage . Shorts- Urban Outfitters . Tights- H&M . Shirt- H&M .Necklace- Warehouse. Shoes -ASOS

 Hii guys,

Its been such a stressful past couple of days, Ive got so much Uni work to do just now but I managed to get the chance to get some quick snaps before i went out today!

Im really liking the androgynous, shirts buttoned up look just now. My white tuxedo jacket would have looked amazing with this outfit but unfortunately its still recovering from last weekend :(

I got really excited when i thought i'd found a fiver again in these shorts! then i realised its probably just the same one as last time.... anyways i bought a lucky Starbucks with it after i finished work to get me in the Friday spirit :)

Is anyone else being a loser and staying in tonight? I handed in my thesis draft today but ive got another literature review due in a week today which i havent started yet... boobs. I feel really sorry for me! Oh well,  il just stay in and sing my heart out to Mariah's All I want for Christmas in my festive socks and jumper.

HAPPY FRIIDAY

Nic
xxxx

Only God Can Understand

Only God Can Understand

My dreams for you are born of faith as I watch you struggle to find your way

They paint a canvas of future hope and the vision of a brighter day

My dreams for you cannot be fulfilled by the efforts of human hands

They are not understood in the earthly realm, only God can understand.

My wish for you is to be the best at whatever you choose to be

To show the world your unselfish love and the joy you bring to me

My wish for you cannot be painted with the words we have at our command

It is not a wish that is made with words, but one that only God can understand.

My prayer for you is to see the world as it was created to be from the start

Filled with love and truth to guide your way as you experience it from your heart

My prayer for you cannot be explained by the greatest minds that fill our land

It is only heard by heavenly ears, for only God can understand.

My love for you does not depend on your abilities or strength to achieve

It is from the deepest part of our souls that our hearts can interweave

My love for you cannot be measured by instruments known to man

It is a love so true that we share in our hearts that only God can understand.

Burgundy Knit

Jumper- NewLook . Shorts- H&M . Stole- NewLook . Shoes- Topshop . Bag- Topshop

HI Everyone,

This isnt actually what i'm wearing today, its actually what i wore the other day but i just didn't have time to blog it! sorreee.

Well i just wanted to show you this burgundy stole i got from... NewLook... i think it was! Its going to be really handy for the party season for adding something extra to an outfit as well as adding a little bit more warmth. (Practicality is one of my biggest justifications for buying things, im really good at it).

I met Rhian from FeFiFo for coffee yesterday and she had a really nice one on in black that she had taken off one of her jackets, it was so nice and glossy and looked amazing. There's nothing worse than scruffy (faux) fur!

Ive also been meaning to post the links to a couple of amazing online stores (hopefully in time for you to get Christmas orders in!) so here you go:

East West - I love love love just about everything on this website?! and they have a sale....

and Moxham - they've been featured in Grazia a couple of times and i think ALL of their pieces are on my Christmas List.

Happy Shopping.

Nic

xxxx

(p.s i just wanted to say THANK YOU for all of your lovely comments and e-mails and tweets! i appreciate every one of them and love hearing from you guys. Especially when you send me links to clothes you think i'd like :) )

Prim and Scruffy

Jacket- Zara . Shorts- Urban Outfitters . Jumper- H&M. Blouse- H&M . Bag- Zara . Shoes- Topshop

Hello everyone,

Here is what i wore to uni today. I started off the morning pretty badly by burning my hand on some boiling hot water and then tripping up the stairs but ten minutes later i found a fiver in my pocket so its aall good!

I love throwing contrasting items of clothing together in one outfit, i started off with this cute blouse under this black jumper and a gold cuff necklace and thought... what can i do to make this look less prim and proper? So i added some ripped high waisted (formerly mens) Levis rolled up shorts and felt waaay more comfortable. Ive had these since i was like 17 and still love them!

Im getting loads of wear out of this jacket too- such a good decision and its really nice and warm BUT i was back in Zara today and as well as seeing that quilted leather i wanted (only one left.... in my size... FATE) I also saw a grey tweed version of this.... help mee!!!

Oh I cant wait to see all of the coverage from the British Fashion Awards tonight too! Very exciting stuff.
Nic

xxxx

Graphic

Gillet- H&M . T-shirt- Topman . Dress (worn as skirt)- NewLook . Bag- Zara . Shoes- Topshop

I dont own a lot of graphic tees (if any) but ive grown pretty attached to this one from Topman, its not actually mine -i stole it- so sadly its only a temporary feature of my wardrobe but maybe i will have to invest in a couple of my own! I think this one is a men's XS but it actually fits really well, not too long and not too boxy.

Ive worn it over that metallic dress (again!) because i love it and cant really stop wearing it, it makes me feel like im going to a Christmas party everyday and that makes me happy.

So last night i bit the bullet and wore that Tuxedo jacket out to a party... and surprise surprise it got dirty! :( booo. Thats a trip to the dry cleaners for me this week! It was worth it though. Apart when it got rained on, that wasnt worth it... and by rain i mean a thunder storm. I got thunder stormed on... in my new jacket :(

Nic

xxxxxxx